Who’s using health data from your fitbit and smartphone?
The importance of ethical standards for consumer-generated data use in healthcare was a hot topic at AcademyHealth’s recent 2018 Health Datapalooza conference. In this blog post in partnership with AcademyHealth, MITRE’s Jessica Skopac and Susan Mbawuike address four questions we should all want to know the answers to regarding our health data. The questions, described further in the blog post, include:
- How many of us have read and know – really know – what we are agreeing to when we sign user agreements to set up accounts with Google, FitBit, Apple, etc.?
- Who is making health-related decisions using my Internet search history and subscription information?
- Did I grant them permission to use my data?
- What standards are organizations following to determine if they should use my data?